I learned much for fibromyalgia.
Some things I wish I never know, while others have made me a better person.
Here are five things I learned:
1. It is acceptable to say “no.”
I spent most of my life trying to please everyone, so I rarely used the word “No”.
Now it seems that the only answer to all the questions they ask me.
Say no, it was something he hated doing.
I felt as if I let the people.
Learn to say without feeling guilty was difficult.
I realized that my body does not allow me to do whatever I want.
It’s not my fault and I should not feel guilty about it.
I’m a volunteer and I do not commit myself to events or projects, because I can not always fulfill my obligations.
I hate to cancel at the last minute, but sometimes it’s necessary.
I talked to my family and friends so that they understand that there are times when I can not do what is expected because of my health.
If you do not understand, it’s your problem, not mine.
2. All the doctors do not know what they do.
Doctors are ordinary people.
They make mistakes. They do not know everything.
They have bad days, and sometimes they make decisions they should not take.
If I think that any health care professional does not understand what I say or do not listen to me, I go there.
It’s time for a new doctor. Get a second or even a third opinion, is not a bad thing.
If I do not feel well, I’m going elsewhere.
My health depends on knowledgeable and doctors who take the time to listen.
3. Listen to your body.
I hate to admit it, but I caused myself a part of my pain and my suffering.
I have not listened to my body when I should have.
If I have a lot of pain, now I’m resting. I do not push myself as I did when I was younger.
Being in tune with your body is one of the best ways to know when a crisis is about to happen. I have telltale signs I seek.
Headaches and shoulders are often the first indicators that a crisis is just around the corner.
I can not stop it, but I can be prepared for it.
4. I found out who my real friends.
I have lost friends and family because of my disease.
I learned the hard way that really cares about me.
I cut some people, because being close to them was bad for my health.
Why do I want to subject myself to negativity and accusations?
I prefer people who build me, not those who overthrew me.
5. I am not alone.
And you either. When I started to have symptoms, computers and the Internet did not exist.
Now we have the world at your fingertips.
Online support groups are a source of friendship and love.
There are so many who feel like me in the world … Now I have friends who I can express my feelings, I find purifying.
I appreciate the friends I’ve made online.
I met incredible warriors of fibromyalgia, which taught me more about this disease and also showed me that I still care!
My illness does not define me, but it has changed my life in ways I never imagined.
Take the time to really think about what fibromyalgia taught me gave me a new appreciation of life.
See how I have evolved over the years is not as depressing as I thought.
Although I suffered physically and emotionally, I am a stronger person because of this.