This post is aimed at relatives and the close circle that surrounds people with fibromyalgia.
Although Fibromyalgia is not noticeable, it is very real. Many people think that a person is not really sick unless they look sick. When you have fibromyalgia, the person can be full of health (on the outside), but inside a procession of terrible terrible symptoms.
Fibromyalgia is a difficult disease to understand. Although there is no cure, it can be managed to have quality of life. As all cases are different, treatments such as exercises, medications or therapies do not work equally well for everyone. It is a constant search to find what works best for you.
Do not let appearances deceive you. Often relatives may have the perception that the person with fibromyalgia is not making enough effort to feel better, because they do not eat well or do not exercise enough. The truth is that every effort that is made, no matter how small, is a job or sacrifice much greater than it would cost to make someone healthy.
Fibromyalgia is not a psychological problem. Many people think that it is impossible to have so many heartbreaking symptoms, and that nothing comes out in their medical exams, so they often attribute this condition to a problem of psychological origin. And it is important to know that there is enough scientific evidence to prove that it is a real condition.
With fibromyalgia, life can change completely. It is natural that the person with fibromyalgia can no longer do the same things as before, or that they need a lot of help from their relatives to be able to do them. This can involve from modifying habits to having to change jobs.
Fluctuation in activity levels is normal. A person with fibromyalgia may be very active for a day, as another day may not even get out of bed. The person is not lazy or pretending to avoid work. There will be days when your amount of energy will be very low. Fibromyalgia is a disease with many ups and downs.
The person with fibromyalgia lives in permanent suffering. Even if you do not express it constantly, you always feel pain throughout your body, exhaustion, and many external stimuli, such as smells, noise, lights, weather and other factors, can make your discomfort worse. Try to put yourself in his place all the time so you can understand him.
Sometimes the person with fibromyalgia avoids physical contact. You can experience a lot of pain with non-painful stimuli such as hand grips, slaps on the back, touches on the arms and shoulders, and even with a strong hug, in general, any touch that produces friction or friction. No one should be offended if at any time, it is about avoiding this kind of intimacy.